UPDATE
CYPACP 06/2026 Update
Considerable work has gone into this version to make it suitable for all babies, infants, children and young people. It has been the culmination of input and commitment from many stakeholders, drawing on a perspective of professionals and families.
VIDEO
Understanding Different Perspectives
Check the videos that we have recorded in order to explain the main aspects of advance care planning. They also contain some guidance on our goals for the document as well as some tips around communication and the challenges faced in the process.
RESOURCES
Parents and Families
We understand that advance care planning can raise a number of questions and we are developing a section of this site to provide you and your family with as much information and resources as possible to help you navigate your way through this process.
Our Prospect
Our vision is to have a truly national document recognising the benefit of standardisation across the whole of the UK for both our patients and our professional colleagues.
Our website will continue to build and will be a central resource of information in advance care planning for babies, children and young people.
Ross Smith, Consultant in Paediatric Palliative Medicine, Martin House Children’s Hospice and Leeds Teaching Hospitals NHS Trust
Helen Bennett, Clinical Research Practitioner, Helen & Douglas House Children’s Hospice
Co-Leads of the CYPACP Collaborative
