Parents and Families

Welcome to the Child and Young Person’s Advance Care Plan Collaborative (CYPACP) website.

Whilst patients and their families have been involved in the production of the care plans and materials within this website, we do recognise that the information provided is currently focused primarily on the needs of clinical professionals utilising the CYPACP to agree and document a plan of care for your or member of your family.

We do, however, aim to provide more information directed at patients and their families in the future and would welcome a family and/or young person to work with us on this resource.  Please let us know if you are interested.Contact us

We understand that advance care planning can raise a large number of complex and emotional issues that need to be discussed, thought about and understood.  In future we will be developing this section of the site to provide you and your family with as much information and resources as possible to help you navigate your way through this process.

If there is anything in particular that you wish to be included please make contact using the email in contact details.

We would also welcome a family and/or young person to work with us on this resource. Please let us know if you are interested.

Please follow link below to get to information regarding the CYPACP for families and young persons.

You may also find the link below useful, where you can access lots of information targeted at families of children with life-limiting or life-threatening conditions.