Author: Sue Lakie

Following feedback from first responders in emergency situations, we have amended the Child and Young Person’s Advance Care Plan (CYPACP) to make the Emergency Management section easier to find quickly.

The Emergency Management pages are now on the reverse of the document and can be accessed by turning it over. A larger, clearer prompt on the front also directs readers to do this.

The new versions are available on our website via the following link:

Standard Advance Care Plan (with and without ReSPECT) – CYPACP

Four new publications have been added to the website. These are the work of dedicated groups of professionals working in collaboration with the CYPACP for which we are very grateful. The titles are:

SUDIC and the Medical Examiner Process

Mental Capacity Act and DoLS

Organ and Tissue Donation

Spirituality in Advance Care Planning

They can all be found at the following link: Additional Resources/Support

We have created this guidance as a way of bringing together resources on the Mental Capacity Act and Deprivation of Liberty Safeguards, with a focus on children and young people. Help Sheets

Bi-monthly advance care plan awareness sessions for babies, children, and young people for any professional to attend – see details under Useful Resources – Additional resources / Support

We have added a link on the Parents & Families page to the article written by WellChild charity for parents and families in which they discuss what is an ACP, what to expect, why it may be a good idea for your child and sharing top tips on what to think about when considering whether to get one.

Sample documents for ante-natal, post-natal and transition ACPs are now available for your guidance. See Document Guidelines/Resources/Example Documents and Case Studies.

In the section “Preparation/Communication of process of management of death” – reminder to consider discussion and explanation of SUDIC process

The number that was on the form for the Organ and Tissue Donation Referral line was incorrect. This has now been amended on all the forms. The correct number is 0300 020 30 40

Full guidance is now available as well as Top Ten Tips for using the CYPACP documents and a copy of the webinar outlining the development of the new CYPACP version and how to use it.

We are delighted to announce that from 5 June 2023 the new Version 5 of the CYPACP is available to use. Guidance on how to complete the form is also available on the website.